puzzled

The puzzle ribbon.

Puzzle ribbon

As far as I know, it’s the logo of the Autism Society of America. I don’t know where it came from beyond that. I did a cursory Google to try to get some history behind it, but came up with little. It’s now overwhelmingly associated with autism and autism awareness.

I chose to use the non-puzzle ribbon graphic for my blog this month. On the face of it, I don’t really have a problem with the puzzle ribbon. I’m sure I puzzle Bede. I also like the idea of an iconic symbol for the cause of autism awareness. But still, I don’t use it.

I don’t use it because people are not puzzles. Or, if they are, they aren’t especially more puzzling because of their autism. The puzzle implies, to me, that autism has to be put together by someone before it is complete. That the autistic person is not an agent, a person, himself – until he is assembled. That could not be farther from the truth. Bede, and every other autistic person I know both online and in the flesh, is a whole, complete person needing nothing added or removed from him to make him finished. He does not need a cure because he is not sick.

So that’s why I don’t like the puzzle ribbon and the puzzle metaphor, and why you won’t see it here.

much better, thanks, and a tornado

Everything clean! Thanks for the well wishes.

The tornado sirens just woke me. In Tornado Alley, we have tornado sirens like air raid sirens that the National Weather Service (I think) turns on when there’s a tornado.

Tonight there are tornadoes far to the north of me, but very close to my parents. They should be fine though – the tornado passed about a mile or two north of them. I stuck with News 9, and they kept me advised.

I think I’ll go back to bed, we seem to be in the clear.

quite tiring around here

Today was, whew. I woke up to someone yelling downstairs, which had me up like a shot – only to find that they were arguing over a soda straw and a yarn end. I was so not patient with that, especially because there were four other yarn bits and two other straws right there, for God’s sake. Argh!

Then Bede was very upset (read: screaming at the top of his lungs) because one of his favorite websites was down. And then Gilbert, who is working on getting out of diapers, had a huge mess. And all the dipes and wipes were out in the laundry room, which is outside. And it was cold.

It was at that point that I wanted to just go back to bed.

And then, this afternoon, the pipe leading to the main sewer clogged, so every single drain in my house overflowed. Yep. While Sean was gone, and unreachable, for about 5 hours. Yes, the toilet too. And the kids were in the shower, so the bathtub was full, and the sink in the bathroom was full because Sean had shaved in it just a few minutes before, and the kitchen sink full because Faith had used it.

And then?

Then the water from the bathroom, the toilet water, the yucky from a rinsed diaper water, it seeped through the floor and started leaking through the kitchen ceiling.

Right over the cereal and cracker boxes. Yah.

Mr. Rooter was called and all was fixed. My mom came over and a.) watched the kids for 20 min while the plumber fixed it and b.) paid for said plumber because I had no money and Sean was gone. Our landlord will reimburse you Mom, but thanks for being there (like always, but we don’t take you for granted Mom. you’re amazing!)

So, that was that. Guh.

My friend learned today that her unborn son does NOT have a life-threatening urinary valve blockage and associated renal failure. So even though my day really blew hers was one of the best of her life, I’d expect. I’m totally basking in that happiness secondhand, and so, so glad that my biggest problems are poopy cereal boxes and squabbles over yarn ends.

Goodnight all.

Apples falling close to trees, and so forth

Bede’s up for his annual visit with the spectacular Diana Mobley, PhD in a month or so. I’m thinking over his development this year, along with autistic mind structure, and I saw these tests posted in a community for adults with Asperger’s Syndrome.

I took ’em.

Autism Spectrum quotient:
Your score: 40
0 – 10 = low
11 – 22 = average (most women score about 15 and most men score about 17)
23 – 31 = above average
32 – 50 is very high (most people with Asperger Syndrome or high-functioning autism score about 35)
50 is maximum

Systemizing quotient:
Your score: 67
0 – 19 = low
20 – 39 = average (most women score about 24 and most men score about 30)
40 – 50 = above average (most people with Asperger Syndrome or high-functioning autism score in this range)
51 – 80 is very high (three times as many people with Asperger Syndrome score in this range, compared to typical men, and almost no women score in this range)
80 is maximum

I always think my own identification as ‘probably autistic’ is all in my head. Ha, ha. Of course it is, where else would it be? In my knees? But seriously. I guess I really might be.

Happy Birthday To Us

My father, father of five, grandfather of eighteen, great-grandfather of two, is 83 years old today. Wow! Way to go Dad!

Beatrice Anna was two, on the 22nd of February.

And tomorrow I shall be 34.

We all got together yesterday, along with many other family members, and had a party! It was Leap Day and seemed like a good time to have one. In years past, we had three generation birthday parties on Leap Day as well, but with a different February representative: my father’s mother, ‘Babe’, was born on February 28th.

Anyway, continuing in the grand tradition, we went to Red Lobster last night. We don’t go out to eat, ever, so it was an even bigger deal. Bede and Trixie were each given a man-to-man defense and the other kids were dealt with on a zone basis. It went well! I can sort of even remember what my food tasted like. And Gilbert and Faith both wanted broccoli instead of french fries, which I found amusing. Maybe because they get more french fries than broccoli at home, and so it seemed a treat? WHo can say.

Bede did very well until the people behind us sang Happy Birthday (to one of their party) and ate cake. He wanted their cake. “Want see cake? Okay, I getchoo CAAAKE!!” After it became apparent to him that he wasn’t going to get their cake, he switched tack to tearfully pleading “Want see let’s-go? Want see backyard?”

We left then, wondering, backyard? Huh?

Turns out he meant the parking lot, which was enclosed by stockade fencing.

Because he’s autistic and you know, they don’t notice details in their surroundings because they’re in their own little world. Yeah. And they can’t communicate  and they’re like “retards or something”.

Yeeeah. That’s it. Oh wait, that’s not it. At all.

baby surprise and other startlements

129

Gloria models her Baby Surprise Jacket, made by Trishy.

This photo is from last week, when I went to go get out of jury duty. In Oklahoma you can call in and get excused if you’re over 70. Everyone else, no dice.

So I schlepped myself and G-Lo to the courthouse. (Well, my mom schlepped us actually, so we wouldn’t have to walk from a far parking place. My mom rocks!) Oklahoma has a great law exempting breastfeeding mothers from jury duty at their request, so I wasn’t worried, but still, what a pain. I got out of it but I have to go back in June to tell them, guess what, I’m breastfeeding. Duh. I think next time I’m going with a doctor’s note and WHO guidelines saying breastfeeding should continue through the first two years at minimum. Oh and a copy of the actual LAW because the judge seemingly hadn’t ever heard of it.

Here’s where I won’t let this devolve into a rant about that. ARGH.

Dong ma?

So Sean and I are Browncoats. Sean would never say he was, he’d say “I enjoyed the canceled television series Firefly” or something like that. But me? I’m a Browncoat and proud.

I found this site tonight which has translations of all the Chinese phrases that are liberally sprinkled throughout the series. For a geek like me it’s pretty addictive!

I scream, you scream…

We all scream for ice cream! Ice Cream for Breakfast Day was again a big hit.

It was a yummy morning for the Gleesons. Sadly I have no photographic record as both of my hands were in use holding Gloria (who prefers her ice cream un-iced and straight from the tap) and scarfing up my own eponymous meal.

In other news nothing much is happening beyond tending to the six. My friend Melissa came over on Thursday and swept my dining room and living room for me, which was WONDERFUL. I am able to keep up with the diapers and the other basic hygiene of the out-of-diapers crowd and well, that’s it. Housework is not even on the freaking stove, let alone the back burner. So it was so amazing to be able to walk around (for a few hours at least) on a crumb-free floor with all the laundry tamed too.

Gilbert is driving me up the wall with whiiiiiiiiiining. Everything he says is whined. Argh. Please pray for us. So far I have not said “Shut the f*** up do you hear me? You are melting my brain! STOOOOP IIIIIT!!!!” and I think I should get major points for that. Three year olds. I tell you. It will get better, it will get better, it will get better.

Oh, Faith and Abby want me to share their current favorite Internet activity: making Zimmer Twins movies.It’s pretty fun!

tongue tie update

So I kept notes on the clickity girl. She needed relatching less and less over the last few days for pain, but still had the same amount of clicking. The air swallowing is getting a little better, but not consistently.

 At this time, I’m not going to consult a doctor. I found out without a referral we would pay out of pocket, and we have our first appointment with the family practice assigned to us by the state (we have state insurance) on Feb. 13th. Can’t get them to see us any sooner, but it’s okay. I’ll ask for a referral then, unless it gets awful between then and now.

My major concern is of course how much Gloria is eating. As long as she’s growing, sleeping well, and going through lots of wet and messy diapers (she is) my fears are assuaged. I also worry about her latch affecting my milk supply and/or damaging my nipples – if I can’t feed her because of this that’s obviously a big problem. So far we are only dealing with minor pain on my part, no actual injury. I’m used to pain.

So, as it stands we will continue to do what we’re doin’.

She sleeps well at night, which makes everything easier. Wakes up about 3-4 times, nurses for a bit, gets burped, and we go back to sleep. I have had much more trying newborns than her, sleep-wise.

All is going as well as it can, which is pretty good, you know?

“The Business of Being Born” in Oklahoma!

Ricki Lake’s documentary, “The Business of Being Born” will be shown at Circle Cinema in Tulsa, Oklahoma on February 17, 19, and 21.

I probably can’t make it – it would mean being gone from my home for far too many hours – but I know many locals who would love to go. If I hear of an OKC to Tulsa roadtrip I’ll edit this post and give details.

an angry morning

I’m really ticked off. I was treated poorly this morning by people who should have wanted to help me and my daughter. It hurt my feelings and made me feel angry and helpless.

First, a brief anatomy lesson.

Gloria has a very “clicky” latch. She also swallows air, audibly. Her latch hurts a bit when she first attaches (normal) and then progresses to a different sort of discomfort as she retracts her tongue and starts clicking and swallowing air. It doesn’t have anything to do with my milk ejection reflex as it happens before it lets down, after, during… it’s independent of that.

I suspect posterior occult tongue tie, or tight frenulum. It’s treated by applying a topical anesthetic to the underside of the tongue (that banana stuff they use before the shot at the dentist) and then the tissue holding the tongue to the bottom of the mouth is cut, and when it heals it’s not as tight. It’s almost painless (even without anesthesia) and it provides immediate resolution of the problem.

The trouble is most doctors have never heard of posterior tongue tie because it doesn’t affect bottlefeeding much. They think tongue tie is largely related to the position of the frenulum, not the length. So you have to really look around to find a pediatrician experienced enough in breastfeeding difficulties and, more importantly, solutions, to diagnose and treat it.

OK, OK Fee, you are thinking. Cut to the chase, as it were.

This is the most breastfeeding friendly pediatrician in Oklahoma City. I’ve met him. He’s really nice, down to earth, and intelligent. (Also, I happen to know he knits. Which, you know, would irrationally predjudice me in his favor.) We went to him about eight years ago when Faith was tiny, I think twice, then moved to Wichita, Kansas. When we moved back to Oklahoma four years ago we didn’t use him as a ped because our insurance had changed.

OK, fast forward to this morning. I called to see if I could schedule a visit today for Gloria. We’d have to pay out of pocket, I knew, but I figured one visit and one procedure would be doable. I was hopeful that we could be seen today, even, since feeding difficulties are very important to catch.

They won’t see us, ever.

Apparently we owed them some money from 8 years ago, like $30 that insurance didn’t pick up, and since we never paid, they very snippily told me “your family is not welcome at our practice and has been discharged.” I asked if we could pay the past due amount this morning and was told no. I said “but my daughter really needs to see Dr. Moore! He’s the only pediatrician I know of with enough breastfeeding experience to diagnose her! Please, let us pay you this miniscule bill we knew NOTHING ABOUT!”

“No.” said the office manager haughtily from her high horse. “You are no-good, no-count people who shouldn’t have children anyway, and they deserve to suffer for your irresponsibility.”

Well, okay, she didn’t say that last part, but she implied it.

So now I have a clicky latch air swallowing kid, an angry feeling in the pit of my stomach, and no other ideas. I guess I get to hope it resolves, which it can, but it’s not fun while you’re waiting for the frenulum to stretch. It takes months.

Those rotten bastards.

ETA: Have mustered some other troops – CBEs, LLL Leaders, and local midwives. Maybe someone has a recommendation.

Presidential Candidate Quiz

70% John McCain
70% Mitt Romney
68% Fred Thompson
67% Tom Tancredo
63% Mike Huckabee
55% Ron Paul
48% Rudy Giuliani
47% Chris Dodd
46% Hillary Clinton
45% Bill Richardson
45% John Edwards
44% Barack Obama
36% Joe Biden
30% Mike Gravel
25% Dennis Kucinich

2008 Presidential Candidate Matching Quiz

Well, that’s interesting. Now all my friends who have results flipped from mine are thinking “How can she like those guys???”

I’m a riddle wrapped in a mystery wearing a vest.

My darling brother

Is ill, and in the hospital. They don’t know what’s wrong with the man, and they’re at the head scratching point of “Huh. Got me.”

I think he’s pretty inconsiderate to go and get sick enough for hospital admittance when I’m 39 weeks pregnant, don’t you? The nerve.

Anyway, if you could keep him in your thoughts and prayers, I’d appreciate it. I’m quite fond of him, you see. You would be too, if you knew him.

 UPDATE: Not admitted, yay! Kept on an IV abx for the afternoon, given multiple blood tests, scheduled for more tests, but by gum sent home. Whew.

cramped up feeling

I’ve had intermittent contractions since about 5AM, but they aren’t getting any stronger or closer together, and they also stopped for a couple hours. I don’t think I’m in labor or anything, but it’s nice to know things are twirling towards freedom. I hadn’t had any real “your pregnancy will be over soon” sensations to speak of and it’s so nice to start getting some of them!

These milder contractions help the baby find the best places to be and help efface the cervix to thin it out. I dislike the term “false labor” applied to them because, unlike Braxton-Hicks contractions earlier in the pregnancy which aren’t actually leading to active labor, these are having an effect on the uterus, baby and cervix – just not necessarily a dilatory one. Prelabor contractions is okay.

Don’t you fret – I’ll post if anything changes.

Six days till EDD, woo!

oof

I’m so big!

I guess I need to get a picture taken. I think this is the biggest baby belly I’ve ever had! I think I gained more weight with Gilbert than I have this time, but for sheer size I think I’m about maxed out.

Dang.

Last chance to guess when and what, here!

ssi update

Whew.

You wouldn’t think it would be so exhausting to sit in a room with a hundred other people for four hours, would you?

But it is.

We finally got the last bit of paperwork filed for Bede’s SSI, and we should get it beginning in February! Yay!

Comments I fielded during my time in the waiting room:

  • Wow, you look like you’re about to pop! (x4)
  • Your sixth? (x5)
  • Knitting? I could never do that. (x2)
  • Homeschooling? I could never do that. (x3)
  • Wow, autistic? I bet he’s amazing huh? (x1)
  • Oh, autistic? Is there any, you know, hope for kids like that? (thankfully, only x1, and I think she knows that autism is Really Okay, now. No thanks to Autism Speaks. Jerks.)

Whew, again. OK, I’m really ready to have the baby now. Nothing else to do before labor hits, so come on, bring it!